Wednesday, 30 September 2015

Ross’ Story of Diabetes And It’s Dangers - Part 2


As time went on things got worse, the hypoglycemic attacks were getting more and more regular, the hospital tried changing his dosage trying to find the trigger. They changed the dosage of the insulin and at one point he had a blood monitor machine placed in him, this would track his bloody levels every 15 minutes. I hoped and prayed they would find the trigger and be able to sort it out and get the condition under control. The results showed that the condition made him more vulnerable when he was asleep. Between the hours of 1am and 5am his sugars would drastically drop and they believed this was why he was having the hypos leading to the seizures so again his medicine was changed.

For a while things seemed to get a little better finally I thought we had got control. However one day we were sat on the settee he had a sugar low our son was with us in the living room playing. I couldn’t get him to eat something sugary and the hypo again made him have a seizure. This frightened me and him. The seizures were now happening in the day. On a few occasions he had 
gone out and I had phone calls from the hospital to say he had been found on the street and taken to hospital by ambulance. Every time he left the house I started to worry for his safety. Low blood sugars were happening more regularly and everything became a battle I used to have to shout at him to eat something sugary when he was having a low literally shoving a spoonful of sugar down his throat, he fought me all the way and when these hypos happened he was a different person he 
was very defensive and angry and would fight me in every way, I knew however this wasn't him and that he was unwell. 

By the time I would get his levels back to normal I would be exhausted. When we moved into our new house I became more of a carer, the fits were regular, the hypos were happening multiple times a day he still hadn’t accepted it he was still in denial he wouldn't eat properly he would up his dosage of insulin if he felt he needed to, he was like a child. The fits that he was having started causing memory loss due to the severity of them, he couldn't hold a coherent conversation and struggled to hold a conversation in person and over the phone. People began to question his intelligence and the amount of times I got asked if he was mentally challenged was unreal. Every time I defended him, every time I would finish his sentences and if he needed to make phone calls I made them on his behalf.


I got to the point where I didn’t feel safe leaving our son in his care I know even he worried, he had completely lost control of the condition. The sugar lows almost always led to a seizure. My son used to get very frightened. It hurt Ross deeply to know his son was frightened for him. The psychological effects of what was going on took a massive effect. He became depressed, withdrawn isolated himself and suffered anxiety. He was frightened of every pain in his body and I was constantly along with his mum, dad and brother trying to reassure him he was ok. He started suffering nightmares so if the seizures weren’t waking myself and my boy up his nightmares did. I begged him to go to the doctors. I didn’t know what to do if I told someone about his condition, he would get angry I was backed against the wall. How was I supposed to get him the help he needed when he wouldn’t let me 
- Rhiannon 


If you're affected by Ross' story or would like to someone about your own or someone else's diabetes, the charity Diabetes UK have a Careline you can contact - Call: 0345 123 2399*, Monday–Friday, 9am–7pm.

Or if you are in Scotland:carelinescotland@diabetes.org.uk